Neurofibromatosis (NF) is a genetic disease that affects nearly 1 in 3,000 births. My good friend, Kari, has a six-year old son, Connor, who was diagnosed with NF at the age of 1. Currently his symptoms include NF related scoliosis and a plexiform tumor on his spine. NF can also lead to learning disabilities, deafness, blindness, and a host of other complications.
NF has impacted our family because my cousin Carly was diagnosed with NF at the age of 18 months. She struggled with multiple surgeries and other NF related issues her entire life, until at the young age of 18, she was diagnosed with NF sarcoma, the first of its kind, which eventually took her life one year later. My uncle Scott has written an incredible book about his family's journey through NF and cancer. It is a book that will change your outlook on life!
The NF Endurance Team is raising money for NF research. Any contribution helps. Please consider making a contribution to help Connor and his fight against NF, and in memory of my cousin, Carly.
The following link allows you to make a donation online.
http://www.active.com/donate/nfraceforresearch09/KHarris420
Some of the team members were interviewed by a local newspaper!
Thank you for helping to make a difference in the lives of children and families with NF!
